Thursday, May 15, 2014

RB Kids Day 2014

The day after Ben's diagnosis, I spoke to his doctor on the phone and asked him where we could find support in the area from other families who faced retinoblastoma.  He answered by telling us about the picnic the Emory Eye Center holds annually....in the spring.  This didn't help us in August 2013, but we looked forward to it ever since.  Last Saturday, we joined about 50 other RB families at a park in Decatur to celebrate these incredible kids who have faced this disease.  This will absolutely be an annual activity for our family and we were able to spend time with the Wartas (Jonas is a few month younger than Ben and had RB about 14 months before him.  They are RB brothers for life. :))






No comments: